Lupus & antiphospholipid syndrome
The lupus damage index revision program: Results from the item generation and reduction phases
Authors' conclusion
This data-driven and expert/patient consensus-based process has proposed 39 candidate items, some with subitems, and definitions for a revised SDI.
Study context
- Population
- International SLE experts and patients (Delphi panel), for a revised Systemic Lupus International Collaborating Clinics (SLICC)/American College of Rheumatology (ACR) Damage Index (SDI)
- Participants
- 146 experts35 countries
- Outcome
- Items for a revised SDI
Methodological detailsitem generation and reduction phases, literature review, Delphi exercise, item reduction committee, Delphi items with median appropriateness score ≤ 4 of 9 excluded; 14-member item reduction committee removed items not reflecting damage, rare or not feasible
- Item generation and reduction phases
- Literature review
- Delphi exercise
- Item reduction committee
- Delphi items with median appropriateness score ≤ 4 of 9 excluded; 14-member item reduction committee removed items not reflecting damage, rare or not feasible
Recommendations
As reported in the abstract
- Items nominated by Delphi exercise
- 2256
- Items identified by literature review
- 117
- Candidate items after removing redundancies
- 226
- Final items
- 39 items across 13 domains
- Original SDI items removed (incl. proteinuria and cranial neuropathy)
- 11
- Items with proposed severity-based subitems
- 17 items (43.6%)
Original publication
The lupus damage index revision program: Results from the item generation and reduction phases. Lupus Sci Med. Published 12 August 2026. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →