Lupus & antiphospholipid syndrome
Racial differences in clinical trial perceptions among a large, predominantly Black cohort of people with systemic lupus erythematosus in the Southeastern USA
Authors' conclusion
We found that only 28% of respondents were willing to participate in lupus clinical trials, with no difference by race.
Study context
- Population
- People with a validated diagnosis of SLE living in Atlanta (Georgians Organised Against Lupus (GOAL) cohort), 2021–2022 survey80% Black
- Participants
- 767 people
- Exposure
- Black vs non-Black respondents
- Outcome
- Willingness to participate in lupus clinical trials
Methodological detailssurvey within population-based, prospective cohort (GOAL), χ2 analyses, univariable logistic regression
- Survey within population-based, prospective cohort (GOAL)
- χ2 analyses
- Univariable logistic regression
Main finding
As reported in the abstract
Willingness to participate in clinical trials
P = 0.071
Observational data: associations, not effects.
Further findings
Correctly identified the definition of a clinical trial
P < 0.001
Factors associated with willingness to participate among Black respondents
- Male gender, unemployed or disabled status, governmental health insurance and higher disease activity were associated with willingness to participate
Original publication
Racial differences in clinical trial perceptions among a large, predominantly Black cohort of people with systemic lupus erythematosus in the Southeastern USA. Lupus Sci Med. Published 4 January 2025. doi:10.
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