Lupus & antiphospholipid syndrome
Use of Popular Opinion Leader Models to Disseminate Information About Clinical Trials to Black Individuals With Lupus in Two US Cities
Authors' conclusion
By leveraging community-academic partnerships, we developed and implemented a curriculum to promote familiarity with clinical trials, leading to information dissemination by POLs in predominantly Black communities that are underrepresented in lupus clinical trials.
Study context
- Population
- Popular opinion leaders (71% with lupus diagnosis, 94% female, 80% Black or African American) in predominantly Black communities in Boston and ChicagoPopular opinion leaders (POLs) in 2 cities
- Participants
- 19 vs 16
- Comparison
- Pre- vs post-curriculum knowledge scores of POLs
- Bostonn = 19
- Chicagon = 16
- Outcome
- Knowledge gained: pre- vs post-test scores on a 5-module curriculum about clinical trials, barriers, facilitators and structural racism in research
Methodological detailscommunity-academic partnership, pre/post-test comparison, virtual delivery, 2 US cities, Program adapted to virtual formats due to the COVID-19 pandemic
- Community-academic partnership
- Pre/post-test comparison
- Virtual delivery
- 2 US cities
- Program adapted to virtual formats due to the COVID-19 pandemic
Main finding
As reported in the abstract
Pre/post knowledge scores
- Significant improvement in pre/post scores for the conduct of clinical trials and history of racism in clinical research
Further findings
Community members reached
Reached virtually
POLs reporting dissemination of information about clinical trials
- POLs reporting dissemination
- 15 (43%)
Original publication
Use of Popular Opinion Leader Models to Disseminate Information About Clinical Trials to Black Individuals With Lupus in Two US Cities. Arthritis Care Res (Hoboken). Published 23 August 2022. doi:10.
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