Lupus & antiphospholipid syndrome

Barriers, Facilitators, and Preferences for Mental Health Services Among Patients With Systemic Lupus Erythematosus: A Qualitative Study

Arthritis Care Res (Hoboken)Published Qualitative study

Authors' conclusion

In the setting of persistent unmet psychosocial needs of patients living with SLE, data from this qualitative study will inform the development and refinement of mental health interventions that bolster psychological wellbeing in the SLE population.

Study context

Population
Adults with systemic lupus erythematosus (SLE) (median age 48 years; 87% female; 33% Black or African American; 33% Hispanic or Latino)
Participants
15 adults
Outcome
Barriers, facilitators and preferences for mental health services
Methodological detailssemistructured interviews, telephone interviews, directed content analysis, Interviews by telephone, audio recorded and transcribed; analysed with NVivo by two coders
  • Semistructured interviews
  • Telephone interviews
  • Directed content analysis
  • Interviews by telephone, audio recorded and transcribed; analysed with NVivo by two coders

Main finding

As reported in the abstract

  • Barriers: mental health stigma, sociodemographic factors, lack of autonomy, time commitment
  • Facilitators: strong relationships with rheumatologists; mental health clinician experience with SLE patients
  • Preferences: education-based formats, mental health providers who work with SLE patients, peer group formats, demographically and disease-matched psychological resources, emphasis on non-disease-related activities

Original publication

Barriers, Facilitators, and Preferences for Mental Health Services Among Patients With Systemic Lupus Erythematosus: A Qualitative Study. Arthritis Care Res (Hoboken). Published 2 April 2024. doi:10.1002/acr.25321

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