Lupus & antiphospholipid syndrome
‘Getting comfortable with the uncomfortable’: barriers, facilitators and influences on reproductive health discussions from Hispanic women with systemic lupus erythematosus in the USA – a qualitative study
Authors' conclusion
Findings reported herein underscore the importance of early, individualised reproductive health counselling for women with SLE.
Study context
- Population
- Hispanic women aged 18–45 with systemic lupus erythematosus (SLE), heterosexually active or considering pregnancy within 3 years; Los Angeles General Medical Center and Lupus LA
- Participants
- 30 semistructured interviews
- Outcome
- Patient-reported barriers and facilitators to reproductive health conversations and attitudes on how these can be improved
Methodological detailssemistructured interviews in English and Spanish, grounded theory analysis
- Semistructured interviews in English and Spanish
- Grounded theory analysis
Main finding
As reported in the abstract
Major themes
- Barriers: often driven by competing clinical priorities and discomfort discussing sensitive topics
- Facilitators: genuine clinician-patient rapport, well-controlled disease activity and patient proactiveness
- Areas of improvement: a more encompassing and thorough data-driven approach to reproductive health discussions throughout disease course
Original publication
‘Getting comfortable with the uncomfortable’: barriers, facilitators and influences on reproductive health discussions from Hispanic women with systemic lupus erythematosus in the USA – a qualitative study. Lupus Sci Med. Published 24 March 2026. doi:10.
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