Lupus & antiphospholipid syndrome
Social and Structural Forces Shaping Reproductive Decision‐Making in Hispanic Women with Systemic Lupus Erythematosus: A Qualitative Study
Authors' conclusion
Reproductive planning among Hispanic women with SLE is influenced by structural, relational, and informational factors extending beyond the clinical encounter. These findings highlight the need for supportive interventions or resources beyond the clinical encounter, including supportive networks, trusted information, and peer-informed support tailored to young women living with SLE.
Study context
- Population
- Hispanic women with systemic lupus erythematosus (SLE) aged 18–45 years, sexually active or considering pregnancy within three years, fluent in English or Spanish, recruited from a safety-net rheumatology clinic and a community lupus support organizationHispanic women with SLE interviewed
- Participants
- 30 women
- Outcome
- Themes influencing reproductive decision-making
Methodological detailssemi-structured interviews, grounded theory-informed approach, Socioecological Model retrospectively applied to guide analysis
- Semi-structured interviews
- Grounded theory-informed approach
- Socioecological Model retrospectively applied to guide analysis
Main finding
As reported in the abstract
- Four major themes aligned with the Socioecological Framework
- Reproductive decision-making was shaped by structural stability, including financial security, career readiness, and confidence managing SLE during pregnancy
- Culture and religion were present but variably integrated into reproductive health considerations
- Partners and family members influenced how risks and decisions were discussed and supported
- Participants relied on informal information networks, including peer experiences and online resources, to interpret reproductive risks and contraception options
Original publication
Social and Structural Forces Shaping Reproductive Decision‐Making in Hispanic Women with Systemic Lupus Erythematosus: A Qualitative Study. Arthritis Care Res (Hoboken). Published 11 November 2026. doi:10.
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