Lupus & antiphospholipid syndrome
Understanding patient perspectives on health-related searches on the internet: Insights from an online survey of Korean patients with systemic lupus erythematosus
Authors' conclusion
Health-related searches on the internet are widely used by SLE patients to gather comprehensive information on the disease and to address unmet needs.
Study context
- Population
- Korean patients with systemic lupus erythematosus (SLE)online survey
- Participants
- 344 patients
- Outcome
- Use of the internet to acquire disease-related information (health-related internet searches)
Methodological detailsonline survey
- Online survey
Main finding
As reported in the abstract
Internet use to acquire disease-related information
- Patients using the internet for disease-related information (of 344)
- 270
- SLE-related internet searches more common in patients younger than 40 years
- p = 0.002
- More common in those with fewer than 15 years of disease duration
- p < 0.001
- More common in those with higher education levels
- p = 0.022
Observational data: associations, not effects.
Further findings
Patient-reported impact of SLE internet searches
- Improved understanding of the disease
- 181
- Motivated self-management
- 166
- Helpful to make a shared decision with physicians
- 98
Original publication
Understanding patient perspectives on health-related searches on the internet: Insights from an online survey of Korean patients with systemic lupus erythematosus. Lupus. Published 18 November 2024. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →