Lupus & antiphospholipid syndrome

Impact of online health information-seeking behavior on shared decision-making in patients with systemic lupus erythematosus: The TRUMP 2 -SLE project

LupusPublished Cross-sectional study

Authors' conclusion

The present study suggests that SDM between physicians and patients is positively associated with online information-seeking behavior, with no negative influence associated with accessing the Internet before clinical consultations.

Study context

Population
Patients with systemic lupus erythematosus (SLE) from five institutions (TRUMP 2 -SLE project)
Participants
464 patients5 institutions
Exposure
Internet use per day (<1 h, 1- < 2 h, ≥2 h) vs none; preferred first source of health information (internet, other media) vs physicians
Outcome
Degree of shared decision-making (SDM) measured via the 9-item SDM-Q-9
Methodological detailsmulticentre (five institutions), general linear model
  • Multicentre (five institutions)
  • General linear model

Main finding

As reported in the abstract

SDM-Q-9 score by daily internet use
Each group vs noneDifference, points (95% CI)
<1 h
6.9(0.32–13.6)
≥2 h
8.75(0.61–16.9)

Observational data: associations, not effects.

Further findings

OutcomeDifference (points) (95% CI)
SDM-Q-9 score by preferred first source of health informationInternetvs Physicians−2.1 (−6.7 to 2.6)
SDM-Q-9 score by preferred first source of health informationOther mediavs Physicians−7.6 (−13.2 to −1.9)

Original publication

Impact of online health information-seeking behavior on shared decision-making in patients with systemic lupus erythematosus: The TRUMP 2 -SLE project. Lupus. Published 31 August 2023. doi:10.1177/09612033231200104

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