Sjögren's disease & overlap diseases
The burden and profile of neurological symptoms in patients with Sjögren disease: results from an international survey
Authors' conclusion
Our findings suggest that the prevalence of neurological symptoms in SjD is likely underestimated and highlight neuro-SjD as a major unmet need.
Study context
- Population
- SjD patients across 60 countries
- Participants
- 4,050 patients60 countries
- Outcome
- Burden of neuro-SjD from the patient perspective, focusing on the overall care journey
Methodological detailsanonymous multilingual survey, co-developed by patient research partners and rheumatologists, distributed via patient associations, international
- Anonymous multilingual survey
- Co-developed by patient research partners and rheumatologists
- Distributed via patient associations
- International
Main finding
As reported in the abstract
- Respondents reporting at least one listed symptom
- All
- Each symptom with medium-to-severe impact
- at least half of the patients
- Formal diagnosis of neuro-SjD (most often by a neurologist), among symptomatic patients
- 21.6%
- Pharmacological therapies, among those diagnosed
- 21%
- Significant or complete symptom improvement, among those treated
- 23%
- Feeling that healthcare providers underestimated their neurological symptoms (overall satisfaction with neuro-SjD care poor)
- half of the respondents
Observational data: associations, not effects.
Original publication
The burden and profile of neurological symptoms in patients with Sjögren disease: results from an international survey. Rheumatology (Oxford). Published 24 February 2026. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →