Sjögren's disease & overlap diseases
Spotlight on Sjögren’s: a patient perspective on burden of illness and unmet needs – results from a real-world survey
An erratum to this article was published (RMD Open, 9 Feb 2026 ↗)
Authors' conclusion
The Spotlight on Sjögren's study reveals the substantial, multifaceted burden of Sjögren's, extending beyond dryness to significantly impair physical, emotional and functional well-being.
Study context
- Population
- Adults with Sjögren's (SjD) in China, France, Germany, Italy, Japan, Spain, UK and USA, recruited via physicians or patient advocacy organisations, December 2023 to September 2024completed the survey
- Participants
- 1,155 adults
- Outcome
- Burden, unmet needs and treatment satisfaction
Methodological detailsreal-world survey, multinational, descriptive analyses
- Real-world survey
- Multinational
- Descriptive analyses
Main finding
As reported in the abstract
Burden of illness, unmet needs and treatment satisfaction
- High emotional burden (rating 5-7 out of 7)
- 57.7%
- Work Productivity and Activity Impairment (WPAI) work impairment
- 46.6%
- WPAI activity impairment
- 48.4%
- Dissatisfied and/or believed disease control could improve (those receiving prescription therapy)
- 77.2%
- Felt current treatments only addressed symptoms, not underlying systemic disease (those not fully satisfied)
- 52.9%
Observational data: associations, not effects.
Original publication
Spotlight on Sjögren’s: a patient perspective on burden of illness and unmet needs – results from a real-world survey. RMD Open. Published 12 January 2026. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →