Pediatric rheumatology

Resource utilization and costs of transitioning from pediatric to adult care for patients with chronic autoinflammatory and autoimmune disorders

Pediatr Rheumatol Online JPublished Prospective cohort study

Authors' conclusion

A structured transition pathway for patients with chronic autoinflammatory and autoimmune disorders is resource and time consuming

Study context

Population
Adolescents with chronic autoinflammatory and autoimmune disorders transitioning from pediatric to adult care49 completed
Participants
58 adolescents
Outcome
Resource use and costs of the key elements of a structured transition pathway
Methodological detailsresource use and cost evaluation
  • Resource use and cost evaluation

Main finding

As reported in the abstract

Cumulative cost of all consultation and education sessions incl. transfer appointment, per patient

Structured transition pathway

283

± 164 · Euro

Observational data: associations, not effects.

Further findings

Completed transition pathway and transferred to adult care

Patients completing the pathway, of 58 enrolled
49 (84.5%)

Time from decision to start transition to final transfer consultation

Mean ± SD, days
315 ± 147

Transfer consultations held jointly with the future adult rheumatologist

Patients, of 49 with transfer consultations
10

Consultations by the multidisciplinary team: team members and duration

Median team members
3
Duration, min (±)
65.5 ± 21.3

Cost of coordinating the transition process

Euro (±)
57.3 ± 15.4

Original publication

Resource utilization and costs of transitioning from pediatric to adult care for patients with chronic autoinflammatory and autoimmune disorders. Pediatr Rheumatol Online J. Published 23 February 2024. doi:10.1186/s12969-024-00963-7

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