Reproductive health knowledge and preferences in adolescent rheumatology patients: a convergent mixed methods study
Authors' conclusion
This study identified gaps in SRH knowledge among female adolescents with susceptible RDs. Many participants are receiving SRH information from non-health care sources, but desire to have discussions on SRH with their provider.
Study context
- Population
- Female adolescents aged 15–21 years with systemic lupus erythematosus (SLE), undifferentiated connective tissue disease (UCTD), mixed connective tissue disease (MCTD) or an overlap disease receiving care from a pediatric rheumatologist, healthcare system in central Pennsylvania10 also interviewed
- Participants
- 16 adolescents
- Exposure
- Teratogenic medication use vs no teratogenic medication use
- Outcome
- SRH knowledge and information sources
Methodological detailssurvey, semi-structured interviews, thematic analysis, Mann-Whitney U test, joint display
- Survey
- Semi-structured interviews
- Thematic analysis
- Mann-Whitney U test
- Joint display
Main finding
As reported in the abstract
SRH knowledge scores (general and lupus-specific)
General sexual and reproductive health (SRH) knowledge score, teratogenic vs no teratogenic medication use (lower with teratogenic use)
2.4 vs. 2.7
Lupus-specific SRH knowledge score, teratogenic vs no teratogenic medication use (lower with teratogenic use)
3.3 vs. 4.4
Observational data: associations, not effects.
Original publication
Reproductive health knowledge and preferences in adolescent rheumatology patients: a convergent mixed methods study. Pediatr Rheumatol Online J. Published 11 November 2025. doi:10. 1186/ s12969-025-01165-5
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