Adolescents’ and Young Adults’ Recommendations for Implementing Healthcare Transition in Rheumatology: A Mixed Methods Study
Authors' conclusion
AYAs emphasized the importance of gaining independence and becoming empowered through the health care transition process with structured support from their rheumatology teams.
Study context
- Population
- And young adults (AYAs) (ages 16–28 years) with self-reported rheumatic conditions, recruited through patient organizations and social media
- Participants
- 39 vs 137
- Exposure
- Focus groups vs Survey
- Focus groupsn = 39
- Surveyn = 137
- Outcome
- AYAs' perspectives on implementing the Six Core Elements of Healthcare Transition within rheumatology care
Methodological detailsqualitative focus groups (Phase One), national survey (Phase Two), Mixed methods analyses by a multidisciplinary team of social science researchers, pediatric rheumatologists, and patients
- Qualitative focus groups (Phase One)
- National survey (Phase Two)
- Mixed methods analyses by a multidisciplinary team of social science researchers, pediatric rheumatologists, and patients
Main finding
As reported in the abstract
AYAs' recommendations for implementing the Six Core Elements
- Focus group participants, previously unfamiliar with the Six Core Elements, reacted favorably to its format and content
- Participants suggested how to logistically execute each component in the clinic
- Overarching recommendation 1: frame health care transition as an opportunity for empowerment
- Overarching recommendation 2: implement a structured education plan
- Overarching recommendation 3: consider the role of parents
- Survey participants would prefer to learn most transitional skills from, and discuss developmentally specific topics with, their rheumatology team
- Survey participants would likely complete programs to learn transitional skills from allied professionals, via patient portals, or in group settings
Observational data: associations, not effects.
Original publication
Adolescents’ and Young Adults’ Recommendations for Implementing Healthcare Transition in Rheumatology: A Mixed Methods Study. Arthritis Care Res (Hoboken). Published 13 February 2023. doi:10.
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