Evaluation of a Pediatric-Adult Dyad Care Model for Transitioning Youth With Childhood-Onset Systemic Lupus Erythematosus
Authors' conclusion
This transition model, incorporating 4 years of combined pediatric-adult care, demonstrated successful transition for youth with cSLE, with > 90% achieving key milestones of initial and sustained follow-up in adult care.
Study context
- Population
- Youth with childhood-onset SLE graduating from the SickKids Transition Clinic (STC), Aug 2016–Sep 2023, transitioned at age 18 to the Young Adult SLE (YASLE) Clinic at Mount Sinai Hospital (MSH) for 4 years of combined pediatric-adult care164 transitioned to YASLE
- Participants
- 234 participants
- Outcome
- Transition success by 3 milestones: (1) initial YASLE follow-up within 1 year; (2) > 1 YASLE visit; (3) sustained follow-up at MSH
Methodological detailsretrospective chart review
- Retrospective chart review
Main finding
As reported in the abstract
Transition milestones
- First milestone achieved
- 98.2%
- First YASLE visit within 1 year
- 96.2%
- Median time to first YASLE visit
- 3.5 months
- Second milestone (> 1 visit)
- 97.5%
- Maintained care at MSH by study end
- 94.2%
- Median follow-up, years (IQR 2.7-7.1)
- 5.1
- Graduated from YASLE
- 45.3%
Observational data: associations, not effects.
Further findings
Disease status at STC
- Active disease (SLEDAI-2K > 4)
- 19.5%
- SDI > 1
- 13.4%
Original publication
Evaluation of a Pediatric-Adult Dyad Care Model for Transitioning Youth With Childhood-Onset Systemic Lupus Erythematosus. J Rheumatol. Published 25 July 2025. doi:10. 3899/ jrheum. 2025-0046
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