Consensus on transition care for juvenile idiopathic arthritis: a Delphi study with youth, caregivers, and health professionals
Authors' conclusion
Although consensus has been reached on the basic transitional care issues for JIA patients, several issues still need to be agreed upon.
Study context
- Population
- Adolescents and young adults with juvenile idiopathic arthritis (JIA), parents and clinicians; Turkeyof 102 contacted (86.3%)
- Participants
- 88 adolescents
- Comparison
- Clinicians vs Youths vs Parents
- Cliniciansn = 48
- Youthsn = 20
- Parentsn = 20
- Outcome
- Acceptance (≥ 70% approval) of key statements of transitional care in JIA
Methodological detailsthree panels, two rounds, ≥ 70% approval threshold
- Three panels
- Two rounds
- ≥ 70% approval threshold
Recommendations
As reported in the abstract
Statements reaching ≥ 70% approval
- Statements selected for Round 1
- 29
- Statements not achieving ≥ 70% approval
- 16
- Statements reviewed in Round 2
- 12
- Statements excluded
- 4
- Final checklist items
- 20
Further findings
- Round 2 participation — Clinicians
- 29 events
Round 2 participation
- Youths and parents remained constant
Original publication
Consensus on transition care for juvenile idiopathic arthritis: a Delphi study with youth, caregivers, and health professionals. Pediatr Rheumatol Online J. Published 18 December 2024. doi:10.
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