“I’d like more options!”: Interviews to explore young people and family decision-making needs for pain management in juvenile idiopathic arthritis
Authors' conclusion
Findings suggest a need for evidence-based information and communication about pain management options, which would be addressed by decision support interventions and HCP training in pain and SDM.
Study context
- Population
- Young people with juvenile idiopathic arthritis (JIA) aged 8–18 years, parents/caregivers and health care providers (HCPs), recruited online across Canada and the United States, from a hospital and a quality improvement network
- Participants
- 12 / 13 / 11
- Comparison
- Young people vs Parents/caregivers vs HCPs
- Young peoplen = 12
- Parents/caregiversn = 13
- HCPsn = 11
- Outcome
- Families' decision-making needs for pain management in JIA
Methodological detailssemi-structured individual interviews, virtual or face-to-face, thematic analysis, Ottawa Decision Support Framework
- Semi-structured individual interviews
- Virtual or face-to-face
- Thematic analysis
- Ottawa Decision Support Framework
Main finding
As reported in the abstract
Decision-making needs for pain management (themes)
- Need to assess pain in an accurate manner
- Need to address pain in pediatric rheumatology consultations
- Need for information on pain management options, especially nonpharmacological approaches
- Importance of effectiveness, safety and ease of use of treatments
- Need to discuss young people/families' values and preferences for pain management options
- Need for decision support
- Themes similar for young people, parents/caregivers and HCPs, although their respective importance varied
Original publication
“I’d like more options!”: Interviews to explore young people and family decision-making needs for pain management in juvenile idiopathic arthritis. Pediatr Rheumatol Online J. Published 26 July 2023. doi:10.
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