Systemic sclerosis & Raynaud's

Physical Therapy in Systemic Sclerosis: The Patient Perspective

Arthritis Care Res (Hoboken)Published Cross-sectional study

Authors' conclusion

We observed a significant variation in the use and content of PT for SSc patients in a primary care setting.

Study context

Population
Patients with systemic sclerosis (SSc) fulfilling American College of Rheumatology (ACR)/EULAR 2013 criteria, treated in the Leiden University Medical Center multidisciplinary care program204 completed
Participants
405 patients
Outcome
Use, satisfaction, needs and preferences regarding PT
Follow-up
2-year period
Methodological detailsquestionnaire survey, single-centre
  • Questionnaire survey
  • Single-centre

Main finding

As reported in the abstract

Used or using physical therapy (PT) in primary care
128 (63%)
Lack of referral or knowledge as reason for non-use (patients not using PT)
39%
Muscle-strengthening exercises
n = 92 [72%]
Range of motion exercises
n = 77 [60%]
Aerobic exercises
n = 72 [56%]
SSc-specific hand exercises
20 (15%)
SSc-specific mouth-opening exercises
7 (6%)
Manual treatment (massage or passive mobilization)
83 (65%)
Satisfaction score (range 0-10), mean ± SD
8.2 ± 1.6

Observational data: associations, not effects.

Further findings

Needs and preferences for PT

Wanted more information on PT
96 (47%)
Wanted to continue, start or restart PT
128 (63%)
Favoring continuous individual treatment (of 128)
56 (44%)

Original publication

Physical Therapy in Systemic Sclerosis: The Patient Perspective. Arthritis Care Res (Hoboken). Published 27 August 2022. doi:10.1002/acr.24741

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