Lupus & antiphospholipid syndrome
Patient outcomes from implementing a shared decision-making aid for systemic lupus erythematosus: a prospective implementation study
Authors' conclusion
Patient outcomes, including shared decision making and perceived acceptability and feasibility of the decision aid, were either good or excellent and persisted during the implementation of a decision aid for patients with SLE.
Study context
- Population
- Adults aged 18 years or older with systemic lupus erythematosus (SLE) identified by medical record review, 15 geographically diverse rheumatology clinics across the USA; no exclusion criteria2,005 assessed for eligibility
- Participants
- 1,895 adults
- Outcome
- Impact of the SLE patient decision aid (full and lite versions) on patient decisional conflict, shared decision making, patient-provider communication, and perceived acceptability and feasibility
- Follow-up
- Baseline, 3 and 6 months
Methodological detailsmulticentre, single-group, Multistakeholder committee including people with lived experience of SLE
- Multicentre
- Single-group
- Multistakeholder committee including people with lived experience of SLE
Main finding
As reported in the abstract
Patient outcomes after viewing the decision aid · baseline visit
- Low Literacy Decisional Conflict Scale score, mean (SD 23.8)
- 19.5
- Preferred role matched actual role in treatment decision making (control preferences scale), 1351 of 1631
- 82.8%
- CollaboRATE score (patient involvement in shared decision making), mean (SD 4.1)
- 25.2
- Patient-provider communication process score, mean (SD 9.3)
- 82.2
- Found the decision aid balanced for information on immunosuppressive drugs vs GC, 1510 of 1855
- 81.4%
Observational data: associations, not effects.
Further findings
Outcome scores at follow-up · 3 and 6 months
- Each outcome score remained consistent at follow-up visits
Original publication
Patient outcomes from implementing a shared decision-making aid for systemic lupus erythematosus: a prospective implementation study. Lancet Rheumatol. Published 17 September 2025. doi:10.
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