Lupus & antiphospholipid syndrome

Clarifying misbeliefs about hydroxychloroquine (HCQ): developing the HCQ benefits versus harm decision aid (HCQ-SAFE) per low health literacy standards

Lupus Sci MedPublished Development and pilot feasibility study

Authors' conclusion

HCQ-SAFE is a stakeholder-informed feasible shared decision-making tool that enhances communication and can potentially improve knowledge, clarify misbeliefs and engage patients in treatment decisions, including those with limited English proficiency.

Study context

Population
Patients with SLE at visits across four clinics, including non-English-speaking patients
Participants
40 patient visits
Outcome
Usability and feasibility on Likert scales (0-7) and net promoter score (0%-100%)
Methodological detailscollaborative stakeholder-informed development, Agency for Healthcare Research and Quality (AHRQ) low literacy principles, four clinics
  • Collaborative stakeholder-informed development
  • AHRQ low literacy principles
  • Four clinics

Main finding

As reported in the abstract

Reviewed in all eligible patient visits, average duration (min)
≈8
Non-English-speaking patients
25%
Patients scoring 100% on knowledge post-test
All
Decisional conflicts after using HCQ-SAFE
0
Likelihood to recommend to peers (clinicians and patients)
100%

Original publication

Clarifying misbeliefs about hydroxychloroquine (HCQ): developing the HCQ benefits versus harm decision aid (HCQ-SAFE) per low health literacy standards. Lupus Sci Med. Published 27 July 2023. doi:10.1136/lupus-2023-000935

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