Lupus & antiphospholipid syndrome

Where, How, and How Much? A Multicenter Cohort Study of the Relationship Across Lupus Decision‐Aid Modality, Place of Administration, Interruption and Viewing Completeness, and Patient‐Reported Outcomes

Arthritis Care Res (Hoboken)Published Multicentre cohort study

Authors' conclusion

The SLE PtDA was effective regardless of setting and modality of delivery.

Study context

Population
Patients with systemic lupus erythematosus (SLE) viewing a self-administered computerized SLE patient decision aid (PtDA) during regular clinic visits at 15 rheumatology clinics43% of 1,895 total
Participants
813 patients
Exposure
SLE PtDA viewing setting (clinic vs home), modality (touchpad, smart phone, computer), interruption and viewing completeness
Outcome
SDM (DCS, PDM scale, CollaboRATE) and patient acceptability, feasibility and satisfaction
Methodological detailswithin an implementation trial, multivariable-adjusted logistic regression, PtDA modality and setting questions added midway after the COVID-19 pandemic started
  • Within an implementation trial
  • Multivariable-adjusted logistic regression
  • PtDA modality and setting questions added midway after the COVID-19 pandemic started

Main finding

As reported in the abstract

SDM and patient outcomes by setting and modality
  • Setting or modality of viewing not associated with shared decision-making (SDM) or patient outcomes, except association of place of viewing with feasibility
  • Interruption while viewing associated with lower feasibility, acceptability, and Preparation for Decision Making (PDM) and decision conflict scale (DCS) scores
  • Incomplete viewing associated with worse PDM and DCS scores
  • Multivariable-adjusted logistic regression

Observational data: associations, not effects.

Original publication

Where, How, and How Much? A Multicenter Cohort Study of the Relationship Across Lupus Decision‐Aid Modality, Place of Administration, Interruption and Viewing Completeness, and Patient‐Reported Outcomes. Arthritis Care Res (Hoboken). Published 30 October 2025. doi:10.1002/acr.25603

Composed by AI from the published abstract and checked against it. How Briefs are made →

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