Lupus & antiphospholipid syndrome
Patient Perspectives on a Decision Aid for Systemic Lupus Erythematosus: Insights and Future Considerations
Authors' conclusion
Overall, this study underscores the significance of optimizing both the information content and determining the appropriate delivery of the tool for its future sustainability.
Study context
- Population
- Patients with systemic lupus erythematosus (SLE) who viewed an SLE decision aid implemented in 15 rheumatology clinics throughout the United States, May to July 2022
- Participants
- 24 patients
- Outcome
- Patient experiences with the SLE decision aid
Methodological detailssemistructured interviews, convenience sample
- Semistructured interviews
- Convenience sample
Main finding
As reported in the abstract
- Patients recognized the value of the SLE decision aid (DA) in providing general knowledge about SLE and treatment options
- Patients desired more comprehensive lifestyle information to better manage their condition
- Importance of multiple formats to cater to different needs, and of tailoring the DA to different stages of SLE
Original publication
Patient Perspectives on a Decision Aid for Systemic Lupus Erythematosus: Insights and Future Considerations. J Rheumatol. Published 15 May 2024. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →