Lupus & antiphospholipid syndrome
Lupus spectrum ambiguity has long-term negative implications for patients
Study context
- Population
- Addressing Lupus Pillars for Health Advancement clinical care team: lupus physicians, biotechnology treatment developers, Lupus Foundation of America patient advocacy representatives and advocacy/government consultants
- Outcome
- Causes and consequences of ambiguity in diagnosis and diagnostic delays in lupus
Methodological detailsseries of virtual meetings, historical, experiential and evidence-based accounts (survey data, literature reviews and patient testimonials)
- Series of virtual meetings
- Historical, experiential and evidence-based accounts (survey data, literature reviews and patient testimonials)
Main finding
As reported in the abstract
- Risks of diagnostic delay: non-specific signs and symptoms that mimic other diseases; lack of diagnostic criteria and referral pathways for non-specialists
- Need for a clearer understanding of the definition of lupus and its natural history
- Need for advances in biotechnology to support accurate and timely diagnosis, with potential development of a lupus spectrum
Observational data: associations, not effects.
Original publication
Lupus spectrum ambiguity has long-term negative implications for patients. Lupus Sci Med. Published 11 January 2023. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →