Lupus & antiphospholipid syndrome
Programme evaluation of Strategies to Embrace Living with Lupus Fearlessly (SELF): an evidence-based digital programme to build and improve lupus self-management skills
Authors' conclusion
SELF utilisation and pilot data indicate that SELF is generally feasible and acceptable, particularly among those needing to build lupus SM skills.
Study context
- Population
- Individuals with lupus recruited through three CDC-funded lupus registry sites across the USA and the Lupus Foundation of America's constituency
- Outcome
- Feasibility, acceptability and preliminary impact (enrolment, retention, ease of utilisation, satisfaction, changes in readiness for SM behaviours, patient-reported outcomes, user feedback)
- Follow-up
- 90 days
Methodological detailsfeasibility and acceptability study, single-group, 90-day pilot, digital self-management intervention, mixed quantitative and qualitative data
- Feasibility and acceptability study
- Single-group
- 90-day pilot
- Digital self-management intervention
- Mixed quantitative and qualitative data
Main finding
As reported in the abstract
Feasibility, acceptability and preliminary impact
Moderate or high skill gaps at programme intake
Nearly 80%
Among completers, closed a skill gap by mastering ≥1 self-management (SM) skill
almost 60%
Original publication
Programme evaluation of Strategies to Embrace Living with Lupus Fearlessly (SELF): an evidence-based digital programme to build and improve lupus self-management skills. Lupus Sci Med. Published 7 October 2025. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →