Pediatric rheumatology

Individual and environmental determinants associated with longer times to access pediatric rheumatology centers for patients with juvenile idiopathic arthritis, a Juvenile Inflammatory Rheumatism (JIR) cohort study

Pediatr Rheumatol Online JPublished Cohort study

Authors' conclusion

Time to first PRst visit was most often short compared to other studies and close to the British recommendations.

Study context

Population
Patients diagnosed with juvenile idiopathic arthritis (JIA) presenting at a JIRcohort centre in France or Switzerland with referral pathway data
Participants
250 patients
Outcome
Time to first pediatric rheumatology assessment
Methodological detailsmulticentre, multivariable analysis
  • Multicentre
  • Multivariable analysis

Main finding

As reported in the abstract

Time to first PR assessment

Overall median time to first pediatric rheumatology (PR) assessment

2.4 months

1.3; 6.9

Observational data: associations, not effects.

Further findings

Factors associated with time before first PR visit

HR (95% CI)
A diagnosis of ERASignificantly associated with a longer time · multivariable analysis0.50 (0.29–0.84)
An appointment with an orthopedist during the referral pathwaySignificantly associated with a longer time · multivariable analysis0.68 (0.49–0.93)
Having a mother with a post-graduate educational attainment levelTendentially associated with a shorter time · multivariable analysis1.32 (0.99–1.78)

Median time to first PR assessment by JIA subtype

Children with systemic juvenile idiopathic arthritis (sJIA)
1.4 months [0.6; 3.8]
Children with enthesitis-related arthritis (ERA)
5.3 months [2.0; 19.1]
  • Ranged widely across the JIA subtypes

Original publication

Individual and environmental determinants associated with longer times to access pediatric rheumatology centers for patients with juvenile idiopathic arthritis, a JIR cohort study. Pediatr Rheumatol Online J. Published 14 March 2023. doi:10.1186/s12969-023-00809-8

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