Pediatric rheumatology

Improving Outcomes of Pediatric Lupus Care Delivery With Provider Goal‐Setting Activities and Multidisciplinary Care Models

Arthritis Care Res (Hoboken)Published Retrospective cohort study

Main finding · pLCI performance (range 0.0-1.0; 1.0 = perfect metric adherence)Result — go to the resultAdjusted β 0.05 95% CI 0.01–0.09

Authors' conclusion

Greater attention to quality metrics is associated with better outcomes in childhood SLE.

Study context

Population
Youth with systemic lupus erythematosus (SLE) in an electronic health record (EHR)-enabled pediatric lupus registry830 visits over 3.5 years
Participants
110 participants
Exposure
Before vs during provider goal-setting activities and population management; multidisciplinary lupus nephritis clinic vs rheumatology clinic
Outcome
pediatric Lupus Care Index (pLCI) performance (range 0.0-1.0) and timely follow-up
Methodological detailsEHR-enabled registry, quality improvement
  • EHR-enabled registry
  • Quality improvement

Main finding

As reported in the abstract

pLCI performance (range 0.0-1.0; 1.0 = perfect metric adherence)

Adjusted β

0.05

95% CI 0.01–0.09

By group

Provider-directed activity

0.74

mean

Before provider-directed activity

0.69

mean

Observational data: associations, not effects.

Further findings

Subsequent prednisone use, pediatric Lupus Care Index (pLCI) ≥0.50

0.72-fold lower adjusted risk of subsequent prednisone use
0.72 (95% CI 0.53, 0.93)

Social determinants (minoritized race, public insurance, social vulnerability)

Not associated with reduced care quality or follow-up; public insurance associated with higher risk of prednisone use

Original publication

Improving Outcomes of Pediatric Lupus Care Delivery With Provider Goal‐Setting Activities and Multidisciplinary Care Models. Arthritis Care Res (Hoboken). Published 18 May 2023. doi:10.1002/acr.25134

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