Pediatric rheumatology

Preferred Language, Patient‐Provider Interactions and Standardized Outcome Assessment in Patients With Pediatric Rheumatologic Conditions

Arthritis Care Res (Hoboken)Published Retrospective cohort study

Authors' conclusion

Reduced communication frequency between families with LPOE with care teams may drive language-related disparities, particularly during periods of system stress.

Study context

Population
Patients with juvenile idiopathic arthritis (JIA) or systemic lupus erythematosus (SLE) at a tertiary care center (2016–2024)matched cohort
Participants
60 vs 107
Exposure
Language preference other than English vs English language preference
  • LPOEn = 60
  • English language preference (ELP)n = 107reference
Outcome
Rates of patient-initiated communications
Methodological detailsmatched one-to-two by age, diagnosis, polyarticular course and disease duration, multivariable negative binomial or logistic regression, tertiary care centre
  • Matched one-to-two by age, diagnosis, polyarticular course and disease duration
  • Multivariable negative binomial or logistic regression
  • Tertiary care centre

Main finding

As reported in the abstract

Patient/family-initiated communications
LPOE vs ELPEstimate (95% CI)
Unadjusted
IRR 0.45(0.29–0.72)
Adjusted for disease severity indicators and COVID-19 pandemic period
aIRR 0.51(0.31–0.84)

Observational data: associations, not effects.

Further findings

OutcomeaOR (CI)
PhVAS completion0.58 (0.32–1.03)

Patient-initiated communications during the COVID-19 pandemic

Families with LPOE initiated 0.18-fold fewer communications during the COVID-19 pandemic
  • P < 0.001 for interaction

Provider-initiated communication frequency

No significant difference by language preference

Original publication

Preferred Language, Patient‐Provider Interactions and Standardized Outcome Assessment in Patients With Pediatric Rheumatologic Conditions. Arthritis Care Res (Hoboken). Published 6 August 2026. doi:10.1002/acr.80133

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