Sjögren's disease & overlap diseases
Impact of time to diagnosis in patients with primary Sjögren's syndrome: a cross-sectional study
Authors' conclusion
Our findings underline the importance of awareness of Sjögren's syndrome and interdisciplinary training of physicians to improve the patient related outcomes due to a reduced diagnostic latency.
Study context
- Population
- Outpatients aged ≥18 years diagnosed with pSS (ICD-10 M35.0) fulfilling ACR/EULAR 2016 criteria at least 12 months before
- Participants
- 170 outpatients
- Exposure
- Longer vs shorter diagnostic delay
- Outcome
- Diagnostic latency prior to pSS diagnosis and its effect on patient-reported outcomes
Methodological detailsstructured questionnaire, outpatient clinic
- Structured questionnaire
- Outpatient clinic
Main finding
As reported in the abstract
Diagnostic latency
Average diagnostic latency
5.98 years
Median diagnostic latency
2 years
Observational data: associations, not effects.
Further findings
- Longer delay: significantly more physician visits
- Longer delay: significantly more frequent vaginal dryness, gastrointestinal symptoms and breathlessness as initial symptoms
Original publication
Impact of time to diagnosis in patients with primary Sjögren's syndrome: a cross-sectional study. Clin Exp Rheumatol. Published 30 July 2024. doi:10.
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