Sjögren's disease & overlap diseases
Development of a web-based ecological momentary assessment tool to measure day-to-day variability of the symptoms in patients with Sjögren’s disease
Authors' conclusion
Our results demonstrate the usability and the relevance of our web-based EMA tool for capturing data that closely reflects daily experiences of patients with SjD.
Study context
- Population
- Consecutive adults with Sjögren's disease (SjD)41 (91.1%) women
- Participants
- 45 adults
- Exposure
- WebApp daily data vs paper-based questionnaires at final visit
- Outcome
- Interdaily variability of symptoms (individual ESSPRI scales and eyes and mouth dryness, 0-10 NRS)
- Follow-up
- 3-month period
Methodological detailsconsecutive enrolment, web-based ecological momentary assessment (EMA) tool development and validation
- Consecutive enrolment
- Web-based ecological momentary assessment (EMA) tool development and validation
Main finding
As reported in the abstract
Daily variability of symptoms
Daily variability of symptoms across the scales (points)
0.5 to 0.8
Observational data: associations, not effects.
Further findings
Predicted error, WebApp vs paper-based questionnaires · 3-month period
- Predicted error range (points)
- −1.2 to −0.3
- Fatigue, predicted error (points, IQR −2.3 to −0.2)
- −1.2
- EULAR Sjögren's Syndrome Patient Reported Index (ESSPRI) score, predicted error (points, IQR −1.7 to −0.3)
- −1.2
- Greatest differences for fatigue and ESSPRI score
Predicted error, WebApp vs paper-based questionnaires · last 2 weeks
- Predicted error range (points)
- - 1.2 to 0.0
- Maximum negative error range (points)
- −2.0 to −1.0
- Maximum positive error range (points)
- −0.3 to 0.0
System Usability Scale (SUS) score
- Median SUS score (IQR 85-95)
- 90
Original publication
Development of a web-based ecological momentary assessment tool to measure day-to-day variability of the symptoms in patients with Sjögren’s disease. RMD Open. Published 2 October 2024. doi:10.
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