Defining patient perception of overall well-being and disease activity in the OMERACT Juvenile Idiopathic Arthritis (JIA) core domain set: A report from the JIA working group
Authors' conclusion
Through an iterative consensus process and achieving agreement from the OMERACT SIG session attendees, the JIA WG has created a detailed definition and description for the two target domains in the patient perception of overall well-being related to disease core domain of the JIA mandatory core domain set.
Study context
- Population
- Patients, caregivers and healthcare providers from 7 countries and 4 continents; JIA core domain set4 continents
- Participants
- 45 patients7 countries
- Comparison
- Patients vs Caregivers vs Healthcare providers
- Patientsn = 6
- Caregiversn = 18
- Healthcare providersn = 21
- Outcome
- Consensus on definition and description of the core domain of patient perception of overall well-being and disease activity
Methodological detailsiterative electronic stakeholder surveys, OMERACT 2023 Special Interest Group (SIG) session
- Iterative electronic stakeholder surveys
- OMERACT 2023 SIG session
Recommendations
As reported in the abstract
Consensus on domain definition, description and title
Consensus threshold exceeded on all survey questions from both stakeholder groups (patients/caregivers, all others)
70%
Original publication
Defining patient perception of overall well-being and disease activity in the OMERACT Juvenile Idiopathic Arthritis (JIA) core domain set: A report from the JIA working group. Semin Arthritis Rheum. Published 30 November 2023. doi:10.
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