Systemic sclerosis & Raynaud's
Use and perceptions of nutrition information resources in systemic sclerosis: a Scleroderma Patient-centred Intervention Network (SPIN) cohort study
Authors' conclusion
Respondents used many different diet and nutrition information resources. They preferred resources from conventional health care providers, affiliated with credible institutions (e.g., SSc patient organisations), or with personal connections (e.g., SSc support groups).
Study context
- Population
- People with systemic sclerosis (SSc) in an international cohort (SPIN)completed the survey
- Participants
- 727 people
- Outcome
- Use of nutrition information resources and their perceived trustworthiness, accessibility, comprehensibility and individualisation (0–10)
Methodological detailssurvey within an international cohort (SPIN)
- Survey within an international cohort (SPIN)
Main finding
As reported in the abstract
Use of nutrition or diet information resources
- Sought nutrition or diet information from at least one resource
- 94%
- Health care providers (most-used category)
- 86%
- Print materials
- 68%
- Websites or social media
- 66%
- Events
- 43%
Observational data: associations, not effects.
Further findings
Perceived ratings of resources
- Users of a resource generally rated it more favourably across all domains than non-users
- Highest-rated: conventional health care providers (doctors, registered dieticians, nurses), SSc patient organisations, SSc support groups, university or research institution websites
Original publication
Use and perceptions of nutrition information resources in systemic sclerosis: a Scleroderma Patient-centred Intervention Network (SPIN) cohort study. Clin Exp Rheumatol. Published 19 September 2023. doi:10.
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