Lupus & antiphospholipid syndrome
Understanding Contributors of Resilience in Youth With Childhood‐Onset Systemic Lupus Erythematosus Through a Socioecological Lens: A Mixed‐Methods Study
Authors' conclusion
Findings support a dynamic model of resilience, shaped by a combination of sociodemographic, disease, personal, cultural and social factors.
Study context
- Population
- Patients with cSLE aged 11 to 19 years from ethnically and culturally diverse backgrounds, Canadian tertiary care center, October 2022 to July 2024
- Participants
- 21 patients
- Comparison
- High vs low socioecological resilience
- Outcome
- Themes contributing to resilience in cSLE
Methodological detailssemistructured interviews, purposive sampling, single tertiary care centre
- Semistructured interviews
- Purposive sampling
- Single tertiary care centre
Main finding
As reported in the abstract
Themes contributing to resilience
- Factors contributing to resilience grouped into five themes: familial environment, social support beyond family, health services and information, life with SLE, and sense of self
- Cultural influences reported to impact several themes
- High resilience: more facilitators in each thematic area; low resilience: more challenges in these areas
Further findings
Patient characteristics by resilience profile
- Low resilience: greater number of adverse childhood experiences, lower health literacy, earlier age at diagnosis, longer disease duration and poorer mental health
Original publication
Understanding Contributors of Resilience in Youth With Childhood‐Onset Systemic Lupus Erythematosus Through a Socioecological Lens: A Mixed‐Methods Study. Arthritis Care Res (Hoboken). Published 10 June 2025. doi:10.
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