The patient’s voice: a cross-sectional study of physical health and disability in juvenile idiopathic arthritis
Authors' conclusion
The strong association between patient- and physician-reported outcome measures and patient-reported physical disability strengthens the importance of including the patient's voice in a comprehensive evaluation of patient outcome in JIA.
Study context
- Population
- Children with juvenile idiopathic arthritis (JIA) in a Norwegian cohort (NorJIA) and sex- and age-matched population-based controls59.3% females, median age 12.7 years (JIA)
- Participants
- 221 vs 207
- Exposure
- JIA vs matched population-based controls
- JIAn = 221
- Controlsn = 207reference
- Outcome
- Self-reported physical and psychosocial health (Child Health Questionnaire (CHQ)) in JIA vs controls; association of patient- and physician-reported outcome measures with physical disability (CHAQ > 0)
Methodological detailssex- and age-matched population-based controls, logistic regression
- Sex- and age-matched population-based controls
- Logistic regression
Main finding
As reported in the abstract
Below the norm for physical health (CHQ PhS < 40)
Observational data: associations, not effects.
Further findings
Below the norm for psychosocial health (CHQ PsS < 40)
Association with physical disability (Child Health Assessment Questionnaire (CHAQ) > 0) in JIA
| aOR (95% CI) | ||
|---|---|---|
| Poor physical health (CHQ PhS < 40) | 19.0 (5.6–64.1) | |
| Disease-related pain | 14.1 (6.8–29.2) | |
| Patient's global assessment of disease impact on wellbeing | 14.0 (6.2–31.6) | |
| Active disease according to Wallace | 36.3 (10.3–128.1) | |
| Physician-reported global assessment of disease activity | 6.2 (3.1–12.6) | |
| 0.050.21520Adjusted odds ratio (log scale) |
- Physical disability (CHAQ > 0) in JIA
- 57.9%
Original publication
The patient’s voice: a cross-sectional study of physical health and disability in juvenile idiopathic arthritis. Pediatr Rheumatol Online J. Published 18 November 2024. doi:10.
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