Survey of adolescents’ needs and parents’ views on sexual health in juvenile idiopathic arthritis
Authors' conclusion
HCPs should consider addressing the unmet need for SH discussions during their patient encounters.
Study context
- Population
- Juvenile idiopathic arthritis (JIA) patients (adults aged 18–45 years recalling adolescence) and their parents, nine rheumatology centres and three patient associations, France, September 2021 to April 2022questionnaires analysed
- Participants
- 76 vs 43
- Exposure
- JIA patients vs their parents
- Patientsn = 76
- Parentsn = 43reference
- Outcome
- Expectations of adolescent JIA patients and perceptions of their parents regarding SH knowledge and communication with HCPs
Methodological detailssurvey, anonymous self-administered questionnaires, multicentre, Conducted September 2021 to April 2022 in France
- Survey
- Anonymous self-administered questionnaires
- Multicentre
- Conducted September 2021 to April 2022 in France
Main finding
As reported in the abstract
SH needs and communication with HCPs
- Patients who thought JIA impacted their romantic relationships
- Half
- Patients comfortable discussing sexual health (SH) with healthcare providers (HCPs)
- 58.7%
- Patients who had discussed SH with HCPs, mainly biomedical issues
- 26.3%
- Ideal setting: individual patient education session at hospital (patients vs parents)
- 51.3% and 34.9%
- Ideal setting: regular consultation (patients vs parents)
- 47.4% and 53.5%
- Ideal setting: dedicated consultation requested by adolescent without parents informed (patients vs parents)
- 38.2% and 20.9%
- HCPs should be proactive in SH (patients vs parents)
- 77.6% and 69.8%
Observational data: associations, not effects.
Further findings
Digital information tool that must be used: videos
P = 0.0127
Digital information tool that must be used: smartphone applications
P = 0.0372
Original publication
Survey of adolescents’ needs and parents’ views on sexual health in juvenile idiopathic arthritis. Pediatr Rheumatol Online J. Published 5 September 2023. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →