Referral, treatment patterns and change in quality of life in the first 12 months in children and young people with juvenile idiopathic arthritis: an analysis of the association with ethnicity and socioeconomic position using data from a cohort study
Authors' conclusion
In this national inception cohort, ethnicity and socioeconomic position do not appear to be associated with access to specialist care, initial treatment or early clinical outcomes.
Study context
- Population
- Treatment-naïve UK children and young people diagnosed with JIA between 2001 and 2019, recruited into Childhood Arthritis Prospective Study (CAPS)median age 8 years
- Participants
- 1,275 children
- Exposure
- Ethnic groups and socioeconomic positions
- Outcome
- Time to first appointment
Methodological detailsnational inception cohort, adjusted Cox proportional hazards models
- National inception cohort
- Adjusted Cox proportional hazards models
Main finding
As reported in the abstract
Median time to first appointment
18 weeks
Observational data: associations, not effects.
Further findings
Referral source and initial treatment
- Similar across groups
Disease activity and health-related quality of life (HRQoL) · first 12 months
- Disease activity and HRQoL improved; HRQoL remained below population norms, with limited improvement beyond 1 year
Original publication
Referral, treatment patterns and change in quality of life in the first 12 months in children and young people with juvenile idiopathic arthritis: an analysis of the association with ethnicity and socioeconomic position using data from a cohort study. Rheumatology (Oxford). Published 25 June 2026. doi:10.
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