Lupus & antiphospholipid syndrome

Patient and Physician Perspectives of Systemic Lupus Erythematosus Flare: A Qualitative Study

J RheumatolPublished Qualitative descriptive study

Authors' conclusion

Patients and physicians described flare differently.

Study context

Population
Purposeful sample of patients with systemic lupus erythematosus (SLE) and practicing rheumatologists
Comparison
Patient vs physician descriptions of SLE flare
Outcome
Descriptions of SLE flare
Methodological detailsin-depth interviews, purposeful sample, applied thematic analysis
  • In-depth interviews
  • Purposeful sample
  • Applied thematic analysis

Main finding

As reported in the abstract

  • Patients: majority described flare symptoms as joint pain, fatigue and skin issues lasting several days
  • Patients: few included objective signs or laboratory measures, when available, as features of flare
  • Rheumatologists: majority defined flare as increased or worsening SLE disease activity, slightly more than half requiring objective findings
  • Rheumatologists: around half included fatigue, pain or other patient-reported symptoms

Parts of this Brief are withheld: the automatic checks could not confirm them against the abstract.

Original publication

Patient and Physician Perspectives of Systemic Lupus Erythematosus Flare: A Qualitative Study. J Rheumatol. Published 15 December 2023. doi:10.3899/jrheum.2023-0721

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