Lupus & antiphospholipid syndrome
A Qualitative Analysis of Patient Perspectives and Preferences in Lupus Management to Guide Lupus Guidelines Development
Authors' conclusion
This work supported the integration of patient experiences in the clinical practice guideline development process and aligned recommendations with real-world patient experiences and priorities, thereby enhancing the clinical applicability of the ACR LN and SLE guidelines.
Study context
- Population
- People with diagnoses of systemic lupus erythematosus (SLE) and/or Lupus Nephritis (LN) in Patient Panels for the American College of Rheumatology (ACR) 2024 LN and 2025 SLE guidelines17 consented to analysis
- Participants
- 19 people
- Outcome
- Patient-reported key themes
Methodological detailscontent analysis, thematic analysis, Key themes presented by Patient Panel representatives during Voting Panel Meetings with evidence for each recommendation, Themes actively incorporated into Voting Panel discussions for the ACR LN and SLE guidelines
- Content analysis
- Thematic analysis
- Key themes presented by Patient Panel representatives during Voting Panel Meetings with evidence for each recommendation
- Themes actively incorporated into Voting Panel discussions for the ACR LN and SLE guidelines
Main finding
As reported in the abstract
- Patient-reported key themes in three domains
- nine
Observational data: associations, not effects.
Original publication
A Qualitative Analysis of Patient Perspectives and Preferences in Lupus Management to Guide Lupus Guidelines Development. Arthritis Care Res (Hoboken). Published 3 November 2025. doi:10.
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