Lupus & antiphospholipid syndrome

Integrating Patient‐Reported Quality Measures in Systemic Lupus Erythematosus: Development of the American College of Rheumatology Implementation Guide

Arthritis Care Res (Hoboken)Published Qualitative study

Authors' conclusion

This study evaluated the implementation of ACR-recommended SLE PROMs and provides actionable recommendations and resources to address challenges through the SLE Quality Measures Implementation Guide.

Study context

Population
Rheumatologists and support staff at five rheumatology practices who piloted collection of American College of Rheumatology (ACR)-recommended systemic lupus erythematosus (SLE) patient-reported outcome measures (PROMs) (physical function (PF) and depression) in at least 50 consecutive patients8 interviewed
Participants
31 participants
Outcome
Themes on implementing SLE PROMs, mapped to CFIR domains
Methodological detailsimplementation research, semistructured interviews, Consolidated Framework for Implementation Research (CFIR) framework, pilot in five rheumatology practices, thematic analysis, deductive and inductive
  • Implementation research, semistructured interviews
  • CFIR framework
  • Pilot in five rheumatology practices
  • Thematic analysis, deductive and inductive

Main finding

As reported in the abstract

  • Key themes: innovations, resources, best practices and challenges in collecting and using SLE PROMs
  • Barriers related to workflow, engagement and resources
  • PROM implementation in SLE care well accepted; supported standardized assessment of mental health and PF through communication and electronic health records integration
  • Insights informed the SLE Quality Measures Implementation Guide (guidelines, workflow recommendations, best practices, educational resources)

Original publication

Integrating Patient‐Reported Quality Measures in Systemic Lupus Erythematosus: Development of the American College of Rheumatology Implementation Guide. Arthritis Care Res (Hoboken). Published 29 April 2026. doi:10.1002/acr.80038

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