Lupus & antiphospholipid syndrome
Lived Education Experience of Young Adults With Childhood- and Adult-Onset Systemic Lupus Erythematosus: A Multicenter Canadian Qualitative Study
Authors' conclusion
Whereas most participants were successfully engaging in higher education, their performance was often negatively affected by the physical and cognitive toll of SLE. Social support and academic accommodations helped to alleviate the challenges experienced by this group.
Study context
- Population
- Young adults with systemic lupus erythematosus (SLE) from 2 SLE clinics in Canada85% female
- Participants
- 13 adults
- Comparison
- Childhood-onset SLE vs Adult-onset SLE
- Childhood-onset SLEn = 8
- Adult-onset SLEn = 5
- Outcome
- Lived educational experiences and perceived barriers from SLE
Methodological detailsmulticentre, individual semistructured interviews, reflexive thematic analysis, Interviews conducted remotely, transcribed verbatim and double-coded
- Multicentre
- Individual semistructured interviews
- Reflexive thematic analysis
- Interviews conducted remotely, transcribed verbatim and double-coded
Main finding
As reported in the abstract
Themes of lived educational experience
- Theme 1: challenges due to SLE (difficulties adjusting to the diagnosis, physical and cognitive symptoms of SLE)
- Theme 2: changes in aspirations (education or career goals modified by reducing course load or shifting to a more sedentary or less demanding career)
- Theme 3: facilitators of student success (social support from family and friends, parental financial support, individualized accommodations from institutions, asynchronous learning opportunities as a response to the COVID pandemic)
- Theme 4: coping and moving forward (more adaptive than maladaptive coping strategies to self-manage, incl. self-acceptance, pacing and planning)
Original publication
Lived Education Experience of Young Adults With Childhood- and Adult-Onset Systemic Lupus Erythematosus: A Multicenter Canadian Qualitative Study. J Rheumatol. Published 1 February 2025. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →