Introducing a parent-centred composite disease activity score for remote monitoring in juvenile dermatomyositis
Authors' conclusion
The ParJDMAI was found to be feasible and to possess good measurement properties. It also proved to potentially serve as a surrogate for physicians' evaluations.
Study context
- Population
- Patients with JDM, multicentre samplemulticentre sample
- Participants
- 254 patients
- Outcome
- Measurement properties of the parent JDM Activity Index (ParJDMAI), a composite DAS for JDM based solely on parent-reported outcomes (4 items, each 0-10; total 0-40)
Methodological detailsmulticentre, OMERACT filter for outcome measures
- Multicentre
- OMERACT filter for outcome measures
Performance
As reported in the abstract
Measurement properties of the ParJDMAI
- Time to complete and score
- <10 minutes
- Internal consistency (Cronbach's alpha)
- 0.86
- Structure: one factor on exploratory factor analysis, eigenvalue
- 2.9
- Discrimination between physician-estimated disease activity states
- P < 0.001
- Responsiveness: standardized response mean among patients judged improved by parents (fair)
- 0.8
Original publication
Introducing a parent-centred composite disease activity score for remote monitoring in juvenile dermatomyositis. Rheumatology (Oxford). Published 13 April 2026. doi:10.
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