Pediatric rheumatology

Validity and Reliability of Four Parent/Patient–Reported Outcome Measures for Juvenile Idiopathic Arthritis Remote Monitoring

Arthritis Care Res (Hoboken)Published Validation study

Authors' conclusion

The 4 tested parent/child-reported outcomes showed good criterion validity and excellent reliability.

Study context

Population
Patients with JIA in the multinational Epidemiology Treatment and Outcome of Childhood Arthritis study
Participants
8,643 vs 6,060
Comparison
Parents vs Patients
  • Parentsn = 8,643
  • Patientsn = 6,060
Outcome
Criterion validity (correlation with physician measures and cJADAS10) and reliability (ICC, 2 visits 7-14 days apart) of 4 parent/child-reported measures: pain, disease activity, morning stiffness duration, active joint count
Methodological detailsmultinational cohort, criterion validity, test–retest reliability (ICC)
  • Multinational cohort
  • Criterion validity
  • Test–retest reliability (ICC)

Performance

As reported in the abstract

Correlation of tested measures with physician-reported measures: moderate

0.4-0.7

ICC, parents (n=442)

0.79 and 0.87

ICC, children (n=344)

0.81 and 0.88

Original publication

Validity and Reliability of Four Parent/Patient–Reported Outcome Measures for Juvenile Idiopathic Arthritis Remote Monitoring. Arthritis Care Res (Hoboken). Published 19 September 2022. doi:10.1002/acr.24855

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