Patient-Reported Outcomes Among Transition-Age Young Adults With Juvenile Idiopathic Arthritis in the Childhood Arthritis and Rheumatology Research Alliance Registry
Authors' conclusion
Young adult respondents with JIA in the CARRA Registry commonly report persistent medication use, but still report more problems with pain as compared to population norms.
Study context
- Population
- Young adults with juvenile idiopathic arthritis (JIA) enrolled in the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry 2015–2019, age ≥ 18 years at last clinical site visit187 (35%) responded
- Participants
- 540 adults
- Exposure
- Complete vs incomplete transfer to adult rheumatology care
- Outcome
- Patient-reported care utilization and outcomes, incl. factors associated with complete transfer to adult rheumatology
- Follow-up
- First Long-term phone survey
Methodological detailsphone survey, CARRA Registry Long-term Follow-up program
- Phone survey
- CARRA Registry Long-term Follow-up program
Main finding
As reported in the abstract
Characteristics by transfer status
Complete transfer
54%
Observational data: associations, not effects.
Further findings
Problems reported across the cohort
- Problems with pain or discomfort
- 65%
- Problems with anxiety or depression
- 45%
Original publication
Patient-Reported Outcomes Among Transition-Age Young Adults With Juvenile Idiopathic Arthritis in the Childhood Arthritis and Rheumatology Research Alliance Registry. J Rheumatol. Published 15 September 2022. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →