Continuing specialist care into adulthood in young people with juvenile idiopathic arthritis: a retrospective cohort study using electronic health records in England
An erratum to this article was published (Rheumatology (Oxford), 1 Jun 2023 ↗)
Authors' conclusion
Two-thirds of young people with JIA continue to receive specialist care beyond age 18.
Study context
- Population
- Young people with JIA in UK primary care EHRs (CPRD), 1 April 2003–31 December 2018, with ≥1 year of GP registration beyond age 18 and HES linkage
- Participants
- 666 people
- Outcome
- Proportion of children who continue to receive specialist care (rheumatology/ophthalmology) as adults
- Follow-up
- Beyond age 18
Methodological detailselectronic health records, UK primary care (Clinical Practice Research Datalink) linked to Hospital Episodes Statistics
- Electronic health records
- UK primary care (Clinical Practice Research Datalink) linked to Hospital Episodes Statistics
Main finding
As reported in the abstract
Continuation of specialist care
Received specialist care beyond age 18
427
64%
Last recorded contact at 16-17 years
90
13%
Did not continue after 16 years
149
22%
Observational data: associations, not effects.
Further findings
Characteristics associated with continuing specialist care beyond age 18
- Older age at diagnosis, female gender, less deprivation and a childhood diagnosis of uveitis were associated with continuing specialist care beyond age 18
Discharge after continuing beyond 18 · by study end date
- Of those continuing beyond 18, subsequently discharged
- 35% (n = 153)
- Of all those discharged, missed appointment recorded after last attended visit (suggesting failure to attend)
- 32%
Original publication
Continuing specialist care into adulthood in young people with juvenile idiopathic arthritis: a retrospective cohort study using electronic health records in England. Rheumatology (Oxford). Published 22 September 2022. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →