Lupus & antiphospholipid syndrome
Canadian patient experiences of lupus nephritis: a qualitative analysis
Authors' conclusion
The unpredictability of living with LN, the heavy treatment burden and a lack of patient/societal awareness substantially affect the lived experience of LN.
Study context
- Population
- Adults ≥18 years with biopsy-proven pure or mixed ISN/RPS class III, IV or V lupus nephritis (LN) from a Canadian lupus cohort86.7% female
- Participants
- 30 adults
- Outcome
- Patient experiences of LN diagnosis, living with LN, and LN healthcare and treatment
Methodological detailssemistructured in-depth interviews, purposeful sampling
- Semistructured in-depth interviews
- Purposeful sampling
Main finding
As reported in the abstract
Provided resources by healthcare providers at diagnosis
16
Need for accessible LN-specific information at diagnosis highlighted
18
Positive impression of their care
26
Original publication
Canadian patient experiences of lupus nephritis: a qualitative analysis. Lupus Sci Med. Published 9 December 2023. doi:10.
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