Systemic sclerosis & Raynaud's
Assessment of the Systemic Sclerosis–Associated Raynaud's Phenomenon Questionnaire: Item Bank and Short‐Form Development
Authors' conclusion
The ASRAP questionnaire has been developed with extensive SSc patient input, with items grounded in the lived experience of SSc-RP to ensure strong content validity, with a focus on how patients feel and function.
Study context
- Population
- Systemic sclerosis (SSc) patients from scleroderma centers in the UK and US over 2 consecutive winters
- Participants
- 420 patients
- Outcome
- Development of the ASRAP questionnaire
Methodological detailsinternational multicenter, patient insight partner support, qualitative assessment and linguistic testing, factor analysis with item response theory, graded response model, computerized adaptive testing simulations, Patient cognitive debriefing interviews to enhance comprehension, ambiguity, cognitive difficulty, relevance and content coverage
- International multicenter
- Patient insight partner support
- Qualitative assessment and linguistic testing
- Factor analysis with item response theory
- Graded response model
- Computerized adaptive testing simulations
- Patient cognitive debriefing interviews to enhance comprehension, ambiguity, cognitive difficulty, relevance and content coverage
Main finding
As reported in the abstract
Preliminary ASRAP questionnaire items
37
Additional items after expert review
2
Retained long-form ASRAP items, calibrated and scored using the graded response model
27
Fixed short-form ASRAP items, developed using computerized adaptive testing simulations
10
Original publication
Assessment of the Systemic Sclerosis–Associated Raynaud's Phenomenon Questionnaire: Item Bank and Short‐Form Development. Arthritis Care Res (Hoboken). Published 30 January 2023. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →