Adherence, helpfulness and barriers to treatment in juvenile idiopathic arthritis – data from a German Inception cohort
Authors' conclusion
The German versions of the PARQ and CARQ appear to have a good reliability and sufficient construct validity.
Study context
- Population
- Patients with newly diagnosed juvenile idiopathic arthritis (JIA) and their parents enrolled in the Inception Cohort Study (ICON), Germany; mean age 10.1 ± 3.7 years, disease duration 4.7 ± 0.8 years481 parents · 465 children
- Participants
- 481 vs 465
- Comparison
- Parent-reported vs child-reported adherence
- Parent Adherence Report Questionnaire (PARQ)n = 481
- Child Adherence Report Questionnaire (CARQ)n = 465
- Outcome
- Reliability and construct validity of German PARQ/CARQ; adherence in JIA
- Follow-up
- 4-year follow-up
Methodological detailstranslation and cross-cultural adaptation, test-retest reliability, construct validity
- Translation and cross-cultural adaptation
- Test-retest reliability
- Construct validity
Performance
As reported in the abstract
Child ability total score for medication (0-100, 100 = best)
PARQ
73.1
mean · SD 23.3
CARQ
76.5
mean · SD 24.2
Further findings
Mean
| Outcome | PARQ | CARQ |
|---|---|---|
| Child ability total score for exercise (0-100) · 4-year follow-up | 85.6 (SD 16.5) | 90.3 (SD 15.0) |
| Child ability total score for splints (0-100) · 4-year follow-up | 72.9 (SD 24.2) | 82.9 (SD 16.5) |
Adherence, helpfulness and barriers
- Adolescents showed poorer adherence than children
- About one third of parents and children reported medication errors
- Perceived helpfulness highest for medication
- Adverse effects reported as the greatest barrier to adherence
Original publication
Adherence, helpfulness and barriers to treatment in juvenile idiopathic arthritis – data from a German Inception cohort. Pediatr Rheumatol Online J. Published 12 April 2023. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →