Pediatric rheumatology

Virtually the same, but remotely different: health professionals, parents and children’s experiences of remote out-patient consultations

Rheumatology (Oxford)Published Qualitative study

Authors' conclusion

Overall, remote consultations were viewed positively, bringing benefits to children, young people and parents. There was a notable transition in responsibility towards children and young people and/or their parents for reporting and recognizing disease flare, compared with face-to-face consultations.

Study context

Population
Children and young people (7–18 years) with juvenile idiopathic arthritis (JIA), their parents and health professionals, tertiary paediatric rheumatology clinic, Northwest Englandobserved
Participants
37 children
Outcome
Experiences of remote (telephone/video) consultations
Methodological detailsInterpretive Description, observation of remote consultations, remote follow-up interviews, reflexive thematic analysis, single-centre, Two groups of experts-by-experience provided input into study design and dissemination materials
  • Interpretive Description
  • Observation of remote consultations
  • Remote follow-up interviews
  • Reflexive thematic analysis
  • Single-centre
  • Two groups of experts-by-experience provided input into study design and dissemination materials

Main finding

As reported in the abstract

  • Overarching theme: remote consultations 'virtually the same but remotely different' to face-to-face hospital-based consultations
  • Sub-theme: 'It's a catch-up rather than a check-up'
  • Sub-theme: 'A sense of familiarity but a shift in dynamics'
  • Sub-theme: 'Minimizing disruption and burden'
  • Sub-theme: 'Being 'seen' but seen differently'
  • Observed: health professionals n = 8; mothers n = 11; fathers n = 3; children and young people n = 15
  • Interviewed: parents n = 7; children and young people n = 8; health professionals n = 7

Original publication

Virtually the same, but remotely different: health professionals, parents and children’s experiences of remote out-patient consultations. Rheumatology (Oxford). Published 18 February 2025. doi:10.1093/rheumatology/keaf106

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