Lupus & antiphospholipid syndrome
Using Patient‐Reported Health Data From Social Media to Identify Diverse Lupus Patients and Assess Their Symptom and Medication Expressions: A Feasibility Study
Authors' conclusion
Our results indicate that social media surveillance can provide valuable data of clinical relevance from the perspective of lupus patients.
Study context
- Population
- US Twitter users posting public lupus-related messages in English, September 1, 2017 to October 31, 201847,715 tweets
- Participants
- 8,446 users
- Outcome
- Feasibility of using public Twitter data to identify diverse lupus patients and gather their perspectives on symptoms and medications
Methodological detailsfeasibility study, social media (Twitter) data, two independent coders
- Feasibility study
- Social media (Twitter) data
- Two independent coders
Main finding
As reported in the abstract
- Persons of color (POCs)
- 34.64%, 62 of 179
- Female
- 85.47%
- Expressions of general pain
- 8.39%, 709 of 8,446
- Expressions of flares
- 6.05%, 511 of 8,446
- Expressions of fatigue
- 4.18%, 353 of 8,446
Observational data: associations, not effects.
Original publication
Using Patient‐Reported Health Data From Social Media to Identify Diverse Lupus Patients and Assess Their Symptom and Medication Expressions: A Feasibility Study. Arthritis Care Res (Hoboken). Published 31 October 2022. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →