Understanding Patient and Physician Perspectives Regarding Innovative Research in Rheumatoid Arthritis
Authors' conclusion
Patients and physicians shared their concerns regarding how being part of research in the setting of clinical care could disrupt day-to-day activities and threaten shared decision making.
Study context
- Population
- Patients with rheumatoid arthritis (RA) and rheumatologists from 2 major university hospitals17 patients with RA, 5 rheumatologists
- Participants
- 17 vs 5
- Comparison
- Patients with RA vs Rheumatologists
- Patients with RAn = 17
- Rheumatologistsn = 5
- Outcome
- Themes of patients' and physicians' perspectives on innovative RA research
Methodological detailsthematic analysis, self-management framework, nested in a larger pRCT
- Thematic analysis
- Self-management framework
- Nested in a larger pRCT
Main finding
As reported in the abstract
- Patients: preferences for information related to medical management decision making
- Patients: necessary behavior change due to treatment-related challenges
- Patients: patient-physician relationship as a foundation for constructively approaching shared decision making
- Physicians: impact of research on medical management of a patient
- Physicians: feasibility of pRCT and biomarker-driven trials
- Physicians: how randomization could challenge shared decision making with patients
Original publication
Understanding Patient and Physician Perspectives Regarding Innovative Research in Rheumatoid Arthritis. J Rheumatol. Published 15 September 2025. doi:10.
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