Lupus & antiphospholipid syndrome
Trust in Health Information Sources Among Patients With Systemic Lupus Erythematosus in the Social Networking Era: The TRUMP2-SLE Study
Authors' conclusion
Although many patients with SLE initially seek health information online, they prefer to consult rheumatologists. Internet usage duration and multidimensional HL influence trust in online sources.
Study context
- Population
- Japanese adults with systemic lupus erythematosus (SLE), June 2020 to August 2021
- Participants
- 510 adults
- Outcome
- Preferences, actual use and trust in health information sources (incl. SNS), and factors influencing trust
Methodological detailsmulticentre, survey, modified Poisson regression
- Multicentre
- Survey
- Modified Poisson regression
Main finding
As reported in the abstract
Trust in health information sources
Trust in doctors
98.2%
Trust in websites and blogs
52%
Trust in social networking services (SNS)
26.8%
Internet as most frequent initial source of health information
45.3%
Observational data: associations, not effects.
Original publication
Trust in Health Information Sources Among Patients With Systemic Lupus Erythematosus in the Social Networking Era: The TRUMP2-SLE Study. J Rheumatol. Published 15 March 2025. doi:10.
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