Systemic sclerosis & Raynaud's
Translation, cross-cultural adaptation, and reliability of the EULAR Systemic Sclerosis Impact of Disease (ScleroID) questionnaire in a Danish population
Authors' conclusion
The overall ICC for the Danish version of the ScleroID was excellent, which indicates that it can be implemented as a reliable patient-reported outcome measure in patients with SSc in Denmark.
Study context
- Population
- Danish patients with systemic sclerosis (SSc)
- Participants
- 50 patients
- Outcome
- Test-retest reliability (ICC) of the Danish ScleroID
Methodological detailsCOSMIN guidelines
- COSMIN guidelines
Main finding
As reported in the abstract
Test-retest reliability, Danish ScleroID overall
Overall intraclass correlation coefficient (ICC)
0.90
95% CI 0.83; 0.94
Further findings
ICC of the 10 individual health domains
- Lowest ICC: digital ulcers
- 0.52 (95% CI 0.29; 0.70)
- Highest ICC: lower gastrointestinal symptoms and fatigue
- 0.87 (0.78; 0.92)
Translation changes
- 'aspects' changed to 'symptoms', 'phenomenon' to 'syndrome', 'social life' to 'social relations and leisure activities'
- All translation steps followed and approved by ScleroID developers
Original publication
Translation, cross-cultural adaptation, and reliability of the EULAR Systemic Sclerosis Impact of Disease (ScleroID) questionnaire in a Danish population. Scand J Rheumatol. Published 3 April 2025. doi:10.
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